Brought to you by Melbourne University Law School

We are in a new era of health research. Technological innovation is enabling digital-mega studies of unprecedented scale and scope. Entirely digitised research endeavours are now commencing across Australia, reaching across whole populations and involving children as well as adults. The potential to link existing data sets and capture and integrate new types of sensitive functional and physiological data raises novel and urgent questions. How do we inspire and maintain public confidence and build trust in the research use of data in an untrusting age? How do we ensure these studies are fit for purpose into the future? Are existing models sufficient, or do we need new approaches?

This one-day Symposium will bring together leaders from across the research, digital, consumer, legal and policy spheres, to identify the unique characteristics of these studies from different perspectives and forecast future opportunities and challenges for digital mega-studies. The Symposium’s forward-looking approach will provide the foundation for informed, robust and sustainable governance of digital mega-studies. True to the topic, we hope all participants will engage in digital brainstorming and prioritising, to capture the cutting-edge thinking from the day.

Please register via this link. Bookings are essential for this free Symposium.

Date: Tuesday 2 April 2019

Time: 9am for 9:15am start, 2.30pm close

Place: Room 608, Melbourne Law School. 185 Pelham Street, Carlton 3053

Morning tea and lunch will be provided.

Convenors: Dr Megan Prictor, Dr Jessica Bell (Melbourne Law School), Professor Melissa Wake, Lynda O’Brien (Gen V, Murdoch Children’s Research Institute)